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Contact Us Careers Search Toggle navigation Who We Are Who We Are Overview ATHN Affiliates ATHN Staff Board of Directors Industry Consortium Government Partners Community Partners News Overview Publications Poster Presentations Oral Presentations Quick Links ATHN CV ATHN Affiliate Directory Document Library What We Do A Quick Look at What We Do National Hemophilia Program Coordinating Center About the NHPCC Regional Support What the NHPCC Does Access to Care Quality Improvement Needs Assessments + Surveys National Priorities National Projects Overview ATHNdataset Community Counts ATHN Projects and Research Studies For Affiliates Why HTCs Partner With Us ATHN Technical Tools & Support Data Management Funding ATHNadvoy For Researchers Why Conduct Your Research Study With ATHN For Patients Overview for Patients Tracking Bleeds Events Data Summit Webinars & Trainings Community Calendar Grants Grants Overview Data Quality Counts DREAM Award CARE Award Help Login / Register Our Top Stories Research ATHN Transcends ATHN Transcends is a natural history cohort study of non-neoplastic hematologic disorders, launching summer of 2020. ATHN Transcends provides clinical researchers in the blood disorders field with a uniform, secure, unbiased, and enduring method to collect long-term safety and efficacy data to increase knowledge about the blood disorders population. ATHN Transcends: Hemophilia Natural History Arm This longitudinal, observational cohort arm aims to determine the safety, effectiveness, and practice of therapy for participants with hemophilia with or without inhibitors. ATHN Transcends: PUPs Arm The PUPs Arm is a national cohort of previously untreated patients (PUPs) with congenital hemophilia. National Projects ATHN is excited to share news from our Centers for Disease Control and Prevention (CDC) partners about a report published in the CDC Morbidity and Mortality Weekly Report (MMWR). We congratulate our CDC and HTC partners and encourage you to review the report . ATHN looks forward to supporting the CDC and HTCs over the next five years of this collaborative project. ATHNdataset Researchers rely on data from this vital community resource for a variety of ATHN research projects. Learn more about this safe, secure national database. ATHN Data Quality Counts This competitive award is supported by The Hemophilia Alliance, The Alliance Pharmacy, and Indiana Hemophilia & Thrombosis Center and provides funding to enrich the ATHNdataset. NHPCC New Mountain States QI Case Study Read the latest NHPCC case study, which follows centers from the Mountain States region that have successfully implemented transition of care QI projects. Patient Experience of Care Survey This survey is an important tool for capturing data and reporting on transition of care planning for the Healthy People 2020 DH-5 measure. ATHN encourages all HTCs to invite their patients to participate. Action Guide Get the Action Guide for Improving Care for People with Bleeding Disorders —a go-to resource for national quality improvement focusing on the transition from pediatric to adult care. Upcoming Events 27-30 OCT, 2020 Thrombosis & Hemostasis Societies of North America (THSNA) Virtual Summit 2020 18-22 NOV, 2020 National Society of Genetic Counselors Virtual Annual Conference 5-8 DEC, 2020 62nd ASH Virtual Annual Meeting and Exposition Featured Publications “Population-based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources” published in the journal Haemophilia . Download full article Transition of Care for Patients with Venous Thromboembolism (VTE) published in the journal Thrombosis Research . Download full article Impact of the 340B Pharmacy Program on Services and Supports for Persons Served by Hemophilia Treatment Centers in the United States published in the Maternal and Child Health Journal . Download full article Highlights Previous Next The American Thrombosis and Hemostasis Network (ATHN) is a nonprofit organization committed to advancing and improving care for individuals affected by bleeding and thrombotic disorders. ATHN manages a national database of patient health data that can be used to improve care and support vital research. SECURING DATA • ADVANCING KNOWLEDGE • TRANSFORMING CARE...